The definition of "Effective Communication" is "2-way process sending the right message, that  is also being correctly received and understood by the other person/s." (direct quote -- credit to http://www.effective-communication.net/).
Once  again, when I visit Simon's school, I notice everyone always putting a  positive spin on everything.  His teacher kept telling me about the  things he can do.  She told me of his strengths.  She told me about his  love of books.  She told me how much he loves music.  She told me how he  loves to play in the gym.  She told me about how verbal he is (in  comparison to the other kids in the class) and how he enjoys circle  time.  It seems to be "taboo" to talk about any issues that he's having.   I had to ask about his "play" and whether he plays with toys.  Nope.   Will he interact with his classmates?  Nope.  But he knows the schedule!   He answers questions when asked.  He knows his shapes, colors,  letters, numbers, etc.  That's good.  No, better......that's wonderful!   But what about his ability to function outside of the classroom?
His  class is HUGE (relatively)!!!!  There are 10 kids with 1 teacher and 3  para-educators (today at least).  Another teacher was in the room as  well, but I suspect that was for my benefit so the teacher would be able  to answer my questions.  But all of these kids have significant issues  and need more direct intervention.  Simon's teacher was explaining to me  after the class stepped away that she was preparing his IEP documents  and doing some testing to determine what his goals/objectives should be  for the next year.  She was amazed that there were no academic goals in  his existing IEP (we were more focused on basic life skills at his last  meeting).  She intends to incorporate more of these in for the next  year.
This would have been a good time for me to ask about ABA  and whether they engage in this teaching/learning technique in the  classroom. It also would have been a good time for me to ask if she feels  that his placement at MPAC is his best option.  However, I still just don't  know how to bring up these questions, probably because I  still don't know WHAT my questions are.  I continue to have doubts  about the whole thing.  Would he be better off at CAPP with Rachel?  Or  PEP?  And what's the situation about MPAC closing?  Will it exist until  he enters kindergarten?  I really would like to know these answers  before the meeting.  But it's been 8 months since I've been thinking  these thoughts, and I'm no closer to having answers now than I was at  that time.
Why is establishing "effective communication" between  myself and Simon's school so  difficult?  Why can't I ask them the  questions that are racing through  my head?   Why can't I engage in an  conversation and voice my concerns?  When I had a conference with  Simon's teacher and the administrators last year, it was the same thing  -- I just found myself listening to them glow about the progress he's  made and I just couldn't say much of anything.  I don't see it.  And, no  matter how hard I try, I can't pull this out of him at home.  I know  he's made improvements.  But is it enough?  Is there more that's ready  to come out that needs coaxing?  Or is he where he's meant to be for the  time being?  I would like to think we're progressing and he's not  falling further behind.  I suppose that statement is true, currently,  mainly because he clearly IS learning.  I DO see that.  And he does  interact with his siblings, even if it's not in the nicest ways and even  if THEY have to initiate that interaction.
I'm comparing them again.  Argh!!!!!
This  is an INDIVIDUALIZED system.  Simon's progress is not dictated by his  twin.  But, then again, if she's making this remarkable progress,  shouldn't he?  And if the answer to that is YES and I see that he's not  successful at it, I have to ask, "Why?".  Is the comparison warranted?  Two  different kids -- can't forget that!!!!
My head hurts.  My heart too.
 
 
{{hugs}} you're not alone, the questions are slow to come when the future is a big question mark. Just remember you don't need to have all the answers yet. I know he'll continue to surprise you.
ReplyDeleteI am sorry for the time you are going through...would it help to say you are not alone?? I have learned to take a notebook to ALL meetings-I have all my questions written down in front of me. I also start the meeting saying "I know my kid has had some very positive things happening-but I am concerned about..." It has changed things...good luck...(visiting from the blog hop)
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